Thursday, June 28, 2012

Forty-Four

Today, Vaughan took forty-four steps! 

His leg braces arrived this morning during PT and he was able to take steps under his own power.  He was able to walk with the support of the parallel bars and a walker.  He was very excited and called at lunch time to share his latest accomplishment. We can't wait to see with our own eyes.

Thanks and praise to God who heals...
 

Thursday, June 21, 2012

A Picture is Worth............

.....more than we can express.  It has been exactly four weeks since Vaughan was admitted to the hospital with total paralysis of his legs.  We felt that this short video speaks more than we can put into words.  God is GOOD.


Wednesday, June 20, 2012

Sunday Visitors

 On Sunday, we had a lovely visit with the Ratliff children. 



 Elijah, Grace Miriam and Naomi have been praying that Mr. Lippert would be healed.   We are convinced their prayers will be answered!


Tuesday, June 19, 2012

Weekend Outing

Saturday and Sunday we were able to bring Vaughan home for the day.  As you can see, Cameron was so excited to help and even had a ride with Grandpa on his wheelchair down to the car.  

I don't think that any of us expected it to be so tiring, but one of the first things Vaughan did was take a very long nap and we enjoyed having him at the dinner table -  we can't believe it has been over three weeks since he has been home.  

While Phil manages the farm animals every day, Cameron II built a temporary ramp so we could easily get access to the house.   

We still are hoping that we won't need to make a lot of drastic changes to the house but are thinking about short-term options we can implement for the time being.   On Wednesday of this week, Vaughan is getting fitted for a custom wheelchair.  I think he will be putting 'off-road' tires on his wishlist so he can get down to see his cows.  They sure do miss him.



Wednesday, June 13, 2012

Getting Mobile

Wednesday was a big day.  In order for Vaughan to be able to leave the hospital on a day pass we had to learn how to get him in and out of a car.  





Vaughan passed with flying colors but our minivan didn't.  The seat was a little too high for a first effort so we had to practice on a 'pretend car' in the OT Gym.  Fortunately we have an alternative strategy, and will be using Phil's Volkswagen - it's about 10 inches lower - to make that first trip home.


Improvement Every Day

Vaughan is making great improvement with the movement of both legs and he is feeling better, which helps him with his Physical and Occupational therapy. Marilynn, Brooke and Cameron are going to the hospital today to practice car transfers. If all goes well Vaughan will be able to come home this weekend for the day. We are very excited...we may not bring him back.

We met with the Neurologist on Sunday and she is very encouraged with his progress.  Vaughan is now off all of his medications (except blood thinners.) He will have two follow-up MRI studies.   One to check for improvement in blood-flow to the effected region of his spine and another brain scan to determine if he has any indication of mini-strokes.  We don't anticipate anything like that, but it is a good way to determine if there is a possibility this could happen again.

FINALLY - starting to think he may be ready for visitors. He is much stronger and not quite as tired by the end of the day after therapy and probably ready for some new faces. We are hoping Vaughan will get a day pass and come home for a few hours on Saturday or Sunday.  So make sure you check the schedule or email us to find out about visiting before you make a trip and find he is MIA.

Thank you for all of your love and prayers - we are so grateful for our friends and family and their unconditional support while Vaughan recovers.

Friday, June 8, 2012

Life's Little Celebrations

Brookie's birthday has always been a special day for Vaughan and he wanted to celebrate, even if it was only to have Birthday Cake with Brooke, Phil and Anna Sophia.  

My sister-in-law Julie was kind enough to bake the cake and my brother Pat delivered it just in time.   It was a sweet reminder that the rhythm of life does not standstill; we can embrace that as a promise of God's faithfulness.  He does not change in the midst of our circumstances and we are blessed beyond measure because of it.  

"For your steadfast love is before my eyes, and I walk in your faithfulness"  - Psalm 25:10




 

Thursday, June 7, 2012

Meeting with the Care Team

On Wednesday we had a family meeting with Vaughan's care team to discuss his recovery program. We are very encouraged that he is improving a little bit every day. Vaughan's right leg is getting stronger all the time and his left leg is also beginning to show improvement (lateral movement) The occupational and physical therapy is going well. So KEEP PRAYING!! God is the Great Physician and it is important that we continue to lift Vaughan in prayer that he will not be discouraged. One challenge is rest and having enough energy to be able to keep up with the intense nature of the PT/OT work he is expected to do. So for the next couple of weeks, while we are ramping up the therapy, the doctors would like to limit vistors, so please email to find out the latest. The care team said that we need to expect Vaughan will most likely be in Inpatient Rehab for 4-6 weeks and then we will see where to go from there. So if you want to send a card or note: St. Joseph Mercy Hospital 5301 McAuley Drive ROOM #429 Ypsilanti, MI 48197-3456

Lemonade for Grandpa


Monday, June 4, 2012

Let's back up for a minute...What happened?

So, here goes....

After doing his morning farm chores on May 24th, Vaughan began to notice his legs were not working quite right on his way back up to the house. He complained he didn't feel well and it was clear something was going dreadfully wrong.

He was able to walk into Chelsea Hospital with support, and immediately taken back to a room.  Within a two hour span, he had lost complete fuction in both legs. No injury, no illness, no symptoms of being sick or back problems, nothing.  The ER physician (who was fantastic by the way) was aggressive in treating him and trying to figure out what was going on.  He perfomed a Spinal and blood tests, MRI and by early afternoon decided that Vaughan needed to be moved to the main hospital.  That trip to took a little longer than expected, but finally we arrived at the hospital early evening.  BTW - three ambulance rides in one day is a bit much.

We had been expecting to see a lot of activity upon arrival, but for some reason the 'A Team' we figured would be waiting for us didn't get the memo.  To add to the delay, he ended up in a Cardiac unit and it was obvious that his heart was not the problem.  So we go into a holding pattern for several hours until Lila's brother, who is a physician at the hospital, called Cam to see what was happening. Uh,not much.  In less than 30 minutes Physicians showed up in number, including spine surgeons with pretty impressive resumes.

Orders were given for two additional MRIs, with a battery of tests for things like ALS, MS, Lupis, Lyme disease, all sorts of exotic things. In fact, some tests we have been told, require out of state testing facilities because they don't even do some of them in Michigan. Two additional tests were ordered - Echo and Cardiac CT, more blood tests and visits by a myriad of doctors who seemed pretty baffled but had finally narrowed it down to two preliminary diagnoses: Acute Spinal Chord Ischemia (stroke of the spine) and Transverse Myelitis.  Both extremely rare and difficult to diagnose.

Finally, on Day #5 we are pretty sure the root cause for Vaughan's paralysis is a stroke in the anterior artery of the spine.  This area of the spine controls the muscles, which explains why he still has sensory feelings, but not movement.


Vaughan is now on a 2nd type of steriods (five day regimin) to reduce the inflamation in his spinal chord and allow the nerves to begin to heal and (hopefully) function again. More test results will begin to come in - although unless those results change treatment, reducing inflamation is what we really care about at this point.  Physical and Occupational Therapy has started and he is on the Rehab floor.

He isn't in pain, but gets really uncomfortable and restless. Sometimes cranky, but not too bad. For a guy used to physical labor and being outdoors every day of his life, being unable to move your legs is frustrating and hard, but his attitude is great.

So now the waiting begins.  We don't know how he will respond to the steroids so we will wait.  Wait to see if the blood flow improves.  Wait to see if there are additional tests, wait for the five days to pass, wait to see if we have more questions than answers, wait for the movement to begin to comeback in his legs, and then wait some more.

We know there are months of hard work and physical therapy ahead.....and we may need to make some changes at the house (not exactly the remodel job I was hoping for.) But Vaughan is strong, healthy and has a faith that will get where God has put him.   Whether he makes a full recovery, or never walks again, it really will be okay.  Easy to say before the really hard work begins but we KNOW we will not be alone on the journey.

A New Normal (For Now)

It is an exhausting task, getting used to Physical Therapy and the daily routine.  Not sure what the plan is right now, but the Doctor is considering limiting visiting hours for a little while.  At least until Vaughan gets to feeling more like his old self.  Please keep praying that God will give daily strength for daily needs.     'His Mercies are New Every Morning'  (Lamentations 3:23)

Saturday, June 2, 2012

Detour Ahead

First of all thank you to all of you -- for your prayers, offers of support at the farm and for your heartfelt love and well wishes.  It is overwhelming how much you all care for Vaughan.

So in light of all of the amazing love and support that is out there, Brooke and I wanted to start a  blog to provide updates and information on how he is doing.  So, stay tuned while we get this going....and keep praying.  This will be a long and difficult trek but with the support of friends and family the journey will be that much easier.